Who is a care partner? Care partners co-manage care in many different ways. They may arrange or schedule services, join patients in visits, or provide emotional support. They may participate in making important decisions about care. Care partners are often family members, but may also be neighbors, friends, or others with a close relationship. Care partners may or may not be involved in the provision of hands-on assistance with daily activities.
Why Is It Important to Help Care Partners Work with Health IT Resources?
Millions of Americans have a family member or friend who helps manage their health and care. Care partners have a profound effect on the quality of care and resources but are often not well supported by healthcare systems. Care partners often struggle to get the information they need to care for others.
Read Our Issue Brief:
Connecting Care Partners through Health Information Technology
The Issue Brief highlights explorations and original research led by OpenNotes at Beth Israel Deaconess Medical Center and the Roger C. Lipitz Center for Integrated Health Care at the Johns Hopkins Bloomberg School of Public Health. We outline existing patient portal functionalities and how we are developing, testing, and scaling new care partner-oriented technologies that will engage care partners more effectively and efficiently in care.
Sara L. Jackson, Hannah Shucard, Joshua M. Liao, Sigall K. Bell, Alan Fossa, Thomas H. Payne, Lisa M. Reisch, Andrea C. Radick, Catherine M. DesRoches, Patricia Fitzgerald, Suzanne Leveille, Jan Walker, Joann G. Elmore