Who is a care partner? Care partners co-manage care in many different ways. They may arrange or schedule services, join patients in visits, or provide emotional support. They may participate in making important decisions about care. Care partners are often family members, but may also be neighbors, friends, or others with a close relationship. Care partners may or may not be involved in the provision of hands-on assistance with daily activities.

If you are a patient or a care partner, take a look at this helpful resource from OpenNotes.

New Shared Access Toolkits

Why Is It Important to Help Care Partners Work with Health IT Resources?

Millions of Americans have a family member or friend who helps manage their health and care. Care partners have a profound effect on the quality of care and resources but are often not well supported by healthcare systems. Care partners often struggle to get the information they need to care for others.

Read Our Issue Brief:

Connecting Care Partners through Health Information Technology

Current Projects

Our Funders

February Quarterly Meeting: Shared Access to the Patient Portal for Older Adults Learning Collaborative

We are working on patient portal-based solutions to help older adults and their care partners get the information they need.

Join us Tuesday, February 4, 2025, 3-4pm EST.

We welcome health care organizations and staff, professionals, patients, clinicians, vendors, and care partners.

Register to attend this meeting.

Watch our November 2024 webinar: Supporting Patients & Care Partners Through Health Information Technology

Research

Dukhanin V, Wolff JL, Salmi L, Harcourt K, Wachenheim D, Byock I, Gonzales MJ, Niehus D, Parshley M, Reay C, Epstein S, Mohile S, Farrell TW, Supiano MA, Jajodia A, DesRoches CM, The Shared Access Project Team.
Jackson S, Mejilla R, Darer J, Oster N, Ralston J, Leveille S, Walker J, Delbanco T, Elmore J.
Sara L. Jackson, Hannah Shucard, Joshua M. Liao, Sigall K. Bell, Alan Fossa, Thomas H. Payne, Lisa M. Reisch, Andrea C. Radick, Catherine M. DesRoches, Patricia Fitzgerald, Suzanne Leveille, Jan Walker, Joann G. Elmore
Wolff JL, Aufill J, Echavarria D, Heughan JA, Lee KT, Connolly RM, Fetting JH, Jelovac D, Papathakis K, Riley C, Stearns V, Zafman N, Thorner E, Levy HP, Guo A, Dy SM, Wolff AC
Wolff JL, Aufill J, Echavarria D, Blackford AL, Connolly RM, Fetting JH, Jelovac D, Papathakis K, Riley C, Stearns V, Zafman N, Thorner E, Levy HP, Guo A, Dy SM, Wolff AC

Leadership

Eugene and Mildred Lipitz Professor, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health

Director, The Roger and Flo Lipitz Center to Advance Policy in Aging and Disability, Johns Hopkins Bloomberg School of Public Health

Associate Professor of Medicine, Harvard Medical School

Director, OpenNotes, Division of General Medicine, Department of Medicine, Beth Israel Deaconess Medical Center

Program Manager, The Roger and Flo Lipitz Center to Advance Policy in Aging and Disability, Johns Hopkins Bloomberg School of Public Health

Senior Project Manager, OpenNotes, Division of General Medicine, Department of Medicine, Beth Israel Deaconess Medical Center

Founding Members

Project Partners