Who is a care partner? Care partners co-manage care in many different ways. They may arrange or schedule services, join patients in visits, or provide emotional support. They may participate in making important decisions about care. Care partners are often family members, but may also be neighbors, friends, or others with a close relationship. Care partners may or may not be involved in the provision of hands-on assistance with daily activities.
If you are a patient or a care partner, take a look at this helpful resource from OpenNotes.
New Shared Access Toolkits
Why Is It Important to Help Care Partners Work with Health IT Resources?
Millions of Americans have a family member or friend who helps manage their health and care. Care partners have a profound effect on the quality of care and resources but are often not well supported by healthcare systems. Care partners often struggle to get the information they need to care for others.
Read Our Issue Brief:
Connecting Care Partners through Health Information Technology
The Issue Brief highlights explorations and original research led by OpenNotes at Beth Israel Deaconess Medical Center and the Roger C. Lipitz Center for Integrated Health Care at the Johns Hopkins Bloomberg School of Public Health. We outline existing patient portal functionalities and how we are developing, testing, and scaling new care partner-oriented technologies that will engage care partners more effectively and efficiently in care.
Current Projects
Our Funders
January Quarterly Meeting: Shared Access to the Patient Portal for Older Adults Learning Collaborative
We are working on patient portal-based solutions to help older adults and their care partners get the information they need.
Join us Tuesday, January 23, 2-3pm EST for our seventh quarterly meeting.
Greg Link, from the federal Administration for Community Living, will join this meeting to discuss the National Strategy to Support Family Caregivers and how to advance the use of health information technologies, such as shared portal access, to support and better engage with care partners as part of the care team.
We welcome health care organizations and staff, professionals, patients, clinicians, vendors, and care partners.
Register to attend this meeting.
Research
DesRoches CM, Walker J, Delbanco T.
Jackson S, Mejilla R, Darer J, Oster N, Ralston J, Leveille S, Walker J, Delbanco T, Elmore J.
Sara L. Jackson, Hannah Shucard, Joshua M. Liao, Sigall K. Bell, Alan Fossa, Thomas H. Payne, Lisa M. Reisch, Andrea C. Radick, Catherine M. DesRoches, Patricia Fitzgerald, Suzanne Leveille, Jan Walker, Joann G. Elmore
Wolff JL, Darer JD, Larsen KL.
Wolff J, Berger A, Clarke D, Green JA, Stametz RA, Yule C, Darer JD
Wolff JL, Darer J, Berger A, Clarke D, Green JA, Stametz RA, Delbanco T, Walker J.
Wolff JL, Kim V, Mintz S, Stametz R, Griffin JM
Wolff JL, Aufill J, Echavarria D, Heughan JA, Lee KT, Connolly RM, Fetting JH, Jelovac D, Papathakis K, Riley C, Stearns V, Zafman N, Thorner E, Levy HP, Guo A, Dy SM, Wolff AC
Wolff JL, Aufill J, Echavarria D, Blackford AL, Connolly RM, Fetting JH, Jelovac D, Papathakis K, Riley C, Stearns V, Zafman N, Thorner E, Levy HP, Guo A, Dy SM, Wolff AC
Wolff JL, Dukhanin V, Burgdorf JG, DesRoches CM
Leadership
Eugene and Mildred Lipitz Professor, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
Director, Roger C. Lipitz Center for Integrated Health Care, Johns Hopkins Bloomberg School of Public Health
Associate Professor of Medicine, Harvard Medical School
Director, OpenNotes, Division of General Medicine, Department of Medicine, Beth Israel Deaconess Medical Center
Program Manager, Roger C. Lipitz Center for Integrated Health Care, Johns Hopkins Bloomberg School of Public Health
Senior Project Manager, OpenNotes, Division of General Medicine, Department of Medicine, Beth Israel Deaconess Medical Center
Founding Members
Project Partners
